A diagnosis of Asperger syndrome is difficult for both your child and you. Although the condition is an autism spectrum disorder, your child will likely have a lesser degree of impairment than children with autism. Just the same, the odd or inappropriate behaviors, problems with communication, and repetitive routines and rituals that accompany Asperger syndrome can make life challenging for the entire family.
It's critical that parents of a child with Asperger syndrome have a good support system in place. This will not only help your child cope with the unique aspects of his or her disorder, and will also help you learn how to manage your feelings and emotions when faced with the challenges of raising a child with the condition.
Part of this support will come from the team of health care professionals treating your child and educating you as the parent of a child with Asperger syndrome. Although Asperger syndrome can't be cured, most children can lead a happy, productive life by taking part in therapy. Therapy addresses the three core symptoms of the disorder: poor communication skills, obsessive or repetitive routines, and physical clumsiness. Experts agree that the earlier this intervention starts, the better the outcome usually is.
Although children need support and treatment to navigate this confusing and frustrating condition, you too will benefit from a strong network of support. You can choose from a number of Asperger support groups; many offer programs for both children and parents. Both national and state organizations now offer support group meetings and activities, as well as an online network. Here are resources you can access to build your own support network.
Online Asperger Syndrome Information and Support center. The website has a database of support groups searchable by where you live. Support groups include treatment and therapy groups for children with Asperger syndrome, as well as support groups for parents.
GRASP. The Global and Regional Asperger Syndrome Partnership was create to improve the lives of adults and teens on the autism spectrum through community outreach, online support, education, and advocacy. Membership is free.
Wrong Planet. This is an internet community offering support to individuals, parents, and professionals with Asperger syndrome, ADHD, and other neurological conditions. Resources include a discussion forum, a library of articles, blogs, and a chat room.
ASPEN. The Asperger Syndrome Education Network is a New Jersey-based resource offering support for families, as well as a listing of other online support groups.
Asperger Syndrome and High Functioning Autism Association. This group reaches people in New York City and throughout Long Island, N.Y., with local activities and events and online support.
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